Saturday, April 21, 2012

Availeth Joy: Neonatal Intensive Care Unit

November 21, 2011
If you haven't read Avey's birth story you can read it here.
Today we had a little girl. When we arrived at the hospital we were immediately hooked up to fetal monitoring and shortly thereafter were told that Avey was having some pretty massive heart decells. The hospital staff wasted no time. We were in and out of the OR within the hour. A few weeks before I went into labor I noticed decreased fetal movement but I thought that it was because sister was growing and because she was bigger she wasn't able to move around as much. I googled it and other mothers noted that they had decreased fetal movements in the last few months of pregnancy so I didn't think much of it.

I had a friend who went to the ER multiple times during her pregnancy for decreased fetal movement and it never amounted to anything. It was my greatest concern that I would be a bother. I didn't want to be that girl but looking back I wish I had been.


When Avey was born she was swimming in a big pile of meconium (a baby's first bowel movement) they theorized that she'd been in it for quite some time. Her umbilical cord was  stained dark green. The doctor said that she was stressed because my placenta was not functioning like it should have. It had weird purple, rubbery, lesions on it. The doctor said that it looked like swirls or waves. After 20 years in the medical field she had never seen anything like it.

During Avey's birth I remember her commenting "The placenta looks old." After having the placenta sent to the pathologist's lab they still were unable to determine what happened exactly. One thing is for sure-- sister was not getting the nutrition she needed. Which was why she was so small. 5 lbs 1 oz and term.

"They took Avey to the nicu because her blood sugar and temperature is low. I only got to see her for ten minutes today."

November 22, 2011
Brady and I received a phone call from the nicu this morning saying that I could try to give Avey a bottle for her 9am feeding if we made it down to the nicu in time. My nurse almost didn't let me go. They had just removed my epidural and my legs were still a little numb. It was hard to stand up and make it to the wheel chair but I was determined. I hadn't seen Avey in 18 hours.


We only stayed in the nicu for a short amount of time because my nurse told me not to overdue it. They told me I could come back for every feeding if I'd like to. 3,6,9,12. Avey's blood sugar and temperature are still low. They gave her an IV to boost her sugars. I just hope we can take her home when we leave Thursday. I might beg them to let me stay till Friday if they don't let her come home Thursday.

Avey had her first bath today. She is so beautiful and her little cry is so funny!

"I have the most incredible husband in the world. Can not believe how well he takes care of me. Avey Williams is blessed to have such a loving Daddy."

November 23, 2011
8:42am-- Things are looking good! They told us we may have be able to have in her in our room as early as tonight! "Thank you everyone for your kind and encouraging words. I am feeling much better and I'm getting around really well. Still very sore but the incision is healing well. Avey is a champ. Her blood sugar has been perfect for the last 24 hours and she is maintaining her body temp all by herself. We are so in love."


5:12pm-- Received some pretty devastating news. Aveys platelet count is very low. They never mentioned it. I guess they've been keeping an eye on it all this time. I was shocked when pediatrics told us that they were going to have to give her a transfusion. This isn't fair. They said that sometimes when two people who have different platelet types have a baby the baby inherits the dominant platelets, which sometimes belong to the Father. If the baby's platelets are different than the mothers than after 
birth the body attacks the foreign  platelets.

If this is what had happened it could take up to two weeks for her body to get rid of my platelets. I feel like this is all my fault.  

"Keep praying. Baby girl is having a platelet transfusion. She'll probably be in the NICU for awhile."

November 24, 2011
Happy first Thanksgiving baby girl!


"Meet Availeth Joy Williams. This is right after her feeding tube came out so she still has tape on her chin. The nurse was rushing to get the tube back in so the video is a little shaky. Baby girl is so brave. She is doing so well in the NICU."




I was overjoyed when they took the tubes out of her nose and put her under a humidity hood. No more stuffy nose for baby Avey!

Still no improvement in her platelet levels. Doctors still don't know what is causing this. 


November 25, 2011
Four days old and she is so alert! They were able to remove her feeding tube today she is eating all by herself now. All we are waiting on now is her platelet count which still remains very low. The doctors are a little baffled.


November 26, 2011
The doctors no longer believe that Avey and I have different platelet types. If we did the IV IG would have fixed the problem. They don't know what is causing this. 

I was discharged today. We stayed at the hospital in the nicu all day. I refused to go home. Around 8pm we went to Target to pick up a couple things. I broke down in the parking lot. I sat in the passenger side of Brady's truck and cried because things are so different then I thought they'd be. I am not supposed to leave the hospital without my full term baby. 

I wasn't suposed to have a c-section. 

I wasn't suposed to have to ask for permission to hold my baby and change her diaper. People were supposed to ask me. I'm jealous of the nurses that get to love on her all day. I'm jealous that they get to spend all night with her while I am sent home. This is not how things are supposed to be. 

10:26am-- "Availeth is off her humidity hood, feeding tube, and everything that was wrong is perfect now except for her platelet levels, that even though she had a transfusion and IV IG, continue to drop. Please keep praying. Brady and I left the hospital at 10 last night. Pumping and feedings are keeping us busy. I am at peace and on a mission. Baby girls gonna get better."

November 27, 2011
5:14pm--"Ok. So. Here's the deal. After another transfusion yesterday Avey's platelets are at 121. Great! Now. They are going to test her again tomorrow. If the count goes up... she comes home! :) If the count stays the same... she stays till she normalizes. :/ If the count goes down... they transfer her to Medical City. :( Prayers are being answered. She is doing so much better. believe with us and for us that our little girl is healed and coming home tomorrow!"

November 28, 2011
7:39am--"Happy One Week Birthday Baby Girl!!! We will be celebrating one week of life at Baylor Frisco. Her levels stayed the same. I am a happy momma."

November 29, 2011
7:15am--"Prayers have been answered! Avey is coming home today! On her due date!"

Avey's favorite nurse!

Her going home outfit was 2385713745 times too big!
Such a proud papa!
Putting the car seat class we took to good use!
The most beautiful thing I've ever seen.
Hmmm... I wonder where I'm going?
We were so excited to get her home! I video taped the walk from the nicu to the car. 
I'm home!

1 comment:

  1. She's a doll! Praise God for his faithfulness through all of this. I know what its like to have a scare right from the just makes your daughter a miracle baby whom God had his hand on and you can more easily believe He'll continue to have his hand on her watching over her and protecting her. Loved reading your story! Bless you and your sweet lil family!